Search Results for Tag : Rare Diseases

News

Delhi HC Directs Centre to Implement National Policy For Rare Diseases(21.08.2017)

Delhi High Court, in order to ensure aid to patients suffering from rare diseases, has asked Centre to take urgent steps to make National Policy for T.....

Tags : Delhi High Court, National Policy For Rare Diseases

Delhi HC Directs Setting Up of Rare Diseases Fund, Committee & Notification of Policy(23.03.2021)

Delhi High Court has directed the Centre to set up a Rare Diseases Committee, a Rare Diseases Fund and to finalise and notify the National Health Poli.....

Tags : Delhi High Court, Rare Diseases Fund, Committee & Notification of Policy

Delhi HC Directs Centre to Immediately Notify Crowd Funding Platform for Treatment of Rare Diseases(15.07.2021)

Delhi High Court has directed the Union Ministry of Health and Family Welfare to immediately launch a dedicated online crowdfunding platform for colle.....

Tags : Delhi High Court, Crowd Funding Platform for Treatment of Rare Diseases

Delhi HC Directs Treatment of Children Suffering from Rare Diseases(15.12.2021)

Delhi High Court has directed that the treatment of children suffering from rare diseases be started forthwith at AIIMS or other Centres of Excellence.....

Tags : Delhi High Court, Treatment of Children Suffering from Rare Diseases

Delhi HC Directs to Issue Directions for Starting Treatment of Children Suffering from Rare Diseases(03.02.2022)

Delhi High Court has directed the Centre to issue communications to the All India Institute of Medical Sciences (AIIMS) and Centres for Excellence est.....

Tags : Delhi High Court, Treatment of Children Suffering from Rare Diseases

Delhi HC: Treatment of Children With Rare Diseases Can’t Be Suspended for Lack of Clinical Studies(10.06.2022)

Delhi High Court has held that treatment of children suffering from rare diseases should not be suspended on the ground that long term clinical trial .....

Tags : Delhi High Court, Clinical Trial, Rare Diseases

Kar. HC to Centre & State: Ensure Implementation of National Rare Diseases Policy(22.07.2022)

Karnataka High Court has directed the Central Government and State Government to ensure implementation of policies framed for treatment of the patient.....

Tags : Karnataka High Court, Central Government, Rare Diseases

Delhi HC: Hold Meeting on Clinical Trials for Developing Indigenous Therapies for Rare Diseases(10.03.2023)

Delhi High Court has directed National Consortium for rare diseases to hold a meeting on clinical trials for developing indigenous therapies for Duche.....

Tags : Delhi High Court, Clinical Trials, Rare Diseases

Delhi HC Constitutes Committee for Implementation of National Rare Diseases Policy(19.05.2023)

Delhi High Court while constituting a five member committee to effectively implement National Policy for Treatment of Rare Diseases, 2017, has stated .....

Tags : Delhi High Court, Rare Diseases, Ministry of Health and Family Welfare

Del. HC to NRDC: Attempt to Procure Medicines for Spinal Muscular Atrophy at Reasonable Price(27.07.2023)

Delhi High Court has directed National Rare Diseases Committee (NRDC) to explore the possibility and attempt to procure medicines for Spinal Muscular .....

Tags : Delhi High Court, National Rare Diseases Committee, Medicine, Reasonable Price

Del. HC to AIIMS: Procure Medicines for Patients Evaluated in Terms of Rare Diseases Policy(06.11.2023)

Delhi High Court has directed AIIMS to commence the procurement of medicines for the evaluated patients/Petitioners as per the fund allocated of Rs. 5.....

Tags : Delhi High Court, Rare Diseases Policy, Procurement, Medicine